My child was just diagnosed with mitochondrial progressive external ophthalmoplegia and they're recommending surgery for drooping eyelids. How bad does this condition usually get over time? Could it become fatal or lead to complete vision loss? I know there's no cure yet for this rare disorder, but I'm really worried about how it progresses and what to expect in the later stages. Can you give some insight on what the final stages might look like?

Answered by 1 Apollo Doctors

Dr Dhankecha Dineshbhai

General Practitioner

MBBS
6+ Yrs

Consult Now

Mitochondrial disorders progress slowly‚Äîeyelid surgery may help vision, but long-term effects vary‚Äîregular neuro follow-up is key.

Dr. Dhankecha Suggests...

Consult a Neurologist

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Answered 14/08/2025

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Disclaimer: Answers on Apollo 247 are not intended to replace your doctor advice. Always seek help of a professional doctor in case of an medical emergency or ailment.