- female
- 10 Years
- 14/08/2025
My child was just diagnosed with mitochondrial progressive external ophthalmoplegia and they're recommending surgery for drooping eyelids. How bad does this condition usually get over time? Could it become fatal or lead to complete vision loss? I know there's no cure yet for this rare disorder, but I'm really worried about how it progresses and what to expect in the later stages. Can you give some insight on what the final stages might look like?
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